Privacy Policy
1. Basic Policy
Integrated ATTR-CM Partnership on AI Cardiac Technology (hereinafter referred to as “the Association”), in carrying out activities aimed at improving the diagnosis rate of cardiac amyloidosis, recognizes the importance of personal information.
We comply with Act on the Protection of Personal Information (hereinafter referred to as the “APPI”) and strive to handle and protect personal information appropriately in accordance with the following Privacy Policy (hereinafter referred to as “the Policy”).
2. Definition of Personal Information
In the Policy, “personal information” refers to information regarding living individuals as defined in Article 2, Paragraph 1 of APPI, which can identify a specific individual through the name, date of birth, or other descriptions contained in such information, or which includes a personal identification codes.
3. Collection of Personal Information
The Association collects personal information through the following methods.
3.1 Method of Collection
- Collection via the Website’s inquiry form
- Collection via email
- Registration for events, seminars, etc.
- Use of other services provided by the Association
3.2 Information Collected
- Name
- Name of affiliated institution or organization
- Job title
- Email address
- Phone number
- Other information necessary for the Association to provide services
4. Purposes of Use of Personal Information
The Association uses the personal information we collect for the following purposes.
- Responding to Inquiries: Responding to questions and requests, and maintaining communication
- Providing Information: Providing information regarding the Association’s activities, events, research findings, etc.
- Communication and Coordination with Participating Organizations and Members: Managing and coordinating consortium activities
- Research Collaboration and Data Provision: Requests for cooperation in research activities such as the development of AI-enabled diagnostic tools
- Compilation of Statistical Data: Compiling statistical information in a form that does not identify individuals.
- Service Improvement: Improving and optimizing the Website and services
- Other: Operations incidental to the above
5. Provision of Personal Information to Third Parties
The Association will not provide personal information to third parties without the individual’s consent, except in the following cases:
- When required by law
- When necessary to protect human life, physical safety, or property, and it is difficult to obtain the individual’s consent
- When particularly necessary for the improvement of public health or the promotion of the sound development of children, and it is difficult to obtain the individual’s consent
- When cooperation is necessary for a national agency, local government, or a party entrusted by them to perform duties prescribed by law, and obtaining the individual’s consent could impede the performance of such duties
- When prior consent has been obtained from the individual
6. Joint use of Personal Information
To ensure the smooth operation of consortium activities, the Association may share personal information as described below.
- Items of personal information to be joint use: Name, affiliated institution, title, email address, telephone number
- Scope of shared users: Employees of the Association
- Purpose of use: Operation and coordination of consortium activities, research collaboration, and information sharing
- Data management officer: Integrated ATTR-CM Partnership on AI Cardiac Technology
7. Management of Personal Information
To ensure the accuracy of personal information and manage it securely, the Association will implement the following measures.
- Technical Security Measures: Appropriate security measures to prevent unauthorized access, loss, destruction, alteration, and leakage
- Organizational Security Measures: Clarification of regulations, facilities, and accountability regarding the handling of personal information
- Human Resource Security Measures: Implementation of appropriate education and training for employees
- Physical Security Measures: Implementation of access control measures for areas where personal information is handled
8. Disclosure, Correction, and Deletion of Personal Information
The Association will respond to requests from individuals regarding the disclosure, correction, suspension of use, or deletion of their personal information within a reasonable period of time, following verification of their identity. However, this does not apply in cases where the Association is not obligated to disclose such information under APPI or other applicable laws and regulations.
- How to Submit a Request
- Please contact us via the inquiry form or using the contact information below.
9. Use of Cookies and Similar Technologies
The Association’s Website may use cookies and similar technologies to enhance User convenience and improve the Website.
9.1 What Are Cookies?
Cookies are small text files that a website sends to your browser and are stored on your computer.
9.2 Purpose of Use
- To track website usage (web analytics)
- To improve User convenience (e.g., retaining language settings)
- To optimize ad delivery
9.3 Disabling Cookies and Similar Technologies
You can refuse to accept cookies by adjusting your browser settings. However, please note that disabling cookies may prevent some services from functioning properly.
10. Web Analytics Tools
The Association’s Website uses web analytics tools such as Google Analytics.
These tools use cookies to collect data on website usage without including any personally identifiable information. The data collected is used to improve the Website and enhance its services.
For more information about Google Analytics, please refer to the following:
- Google Analytics Terms of Service
- https://marketingplatform.google.com/about/analytics/terms/jp/
- Google Privacy Policy
- https://policies.google.com/privacy
11. Links to External Services
The Website may contain links to external sites. The Association is not responsible for the handling of personal information on those linked websites. Please review the Privacy Policy of the linked sites.
12. Children’s Personal Information
As a general rule, the Association does not collect personal information from children under the age of 15. If a child under the age of 15 provides personal information, please ensure that parental consent has been obtained.
13. Changes to the Privacy Policy
The association may revise the Policy in response to changes in laws and regulations, social conditions, technological advancements, and other factors. The revised Privacy Policy shall take effect upon its posting on the Website. The Association will provide advance notice of any significant changes on the Website.
14. Contact Information
For questions, complaints, or requests regarding the handling of personal information, please contact the Association via the inquiry form.
Effective Date: March 1, 2026
Integrated ATTR-CM Partnership on AI Cardiac Technology